Can I Join?

If you/your child are interested in taking part in the FORT Study, just follow these three steps:

  1. Check the criteria. You/your child may be able to join if you:
  • Are 6 to 65 years old
  • Have been diagnosed with PKAN
  • Do not need a ventilator
  • Have not had a deep brain stimulation device implanted within 6 months
  • Have not taken deferiprone for 30 days*

There are other criteria to meet, which will be discussed with you.

*Please refer to FAQ Question 4  for further details.

2. Take the pre-qualification screener or call our study team on 1-844-363-1866.

  • If you/your child pre-qualify for the FORT Study, you/your child will be referred to the nearest study clinic
  1. Visit the study clinic, where the study team will:
  • Discuss the study in more detail and explain what participation would mean for you/your child
  • Talk through the potential benefits and risks of being involved in the study
  • Ask questions and carry out medical tests to determine whether you/your child are right for the study, and the study is right for you/your child

If you/your child are eligible to participate, all study-related treatment and care will be provided without charge. If you/your child decide to participate, you/your child may withdraw from the study at any time without giving a reason.


Ready to get started?